For years, women diagnosed with Polycystic Ovary Syndrome (PCOS) have shared a common frustration.
The name never seemed to tell the whole story.
Despite affecting everything from metabolism and fertility to mental health and energy levels, the condition’s name focused solely on the ovaries. Now, that is changing, with growing support for the term PMOS, or Polycystic Ovarian Metabolic Syndrome, a name many experts believe more accurately reflects the reality of living with the condition.
For clinical and reproductive psychologist Narelle Dickinson, director of Lotus Health and Psychology, the change is about much more than language.
“The revised term PMOS isn’t just a name change, it’s a recognition of the lived experience of this complex condition,” she says.
“Women have long felt that the term PCOS reduced what is actually a complex whole-body condition to just ovaries, so acknowledging the broader metabolic and psychological impacts is more clinically accurate as well as more emotionally validating.”
It’s estimated that PMOS affects around one in 10 women of reproductive age, making it one of the most common hormonal conditions in Australia. Yet despite its prevalence, many women still struggle to understand the condition and the far-reaching ways it can affect their lives.
Doctor of Chinese Medicine and Director of Ova Acupuncture and Chinese Medicine, Dr Michelle Smith, understands that journey firsthand.
Diagnosed at just 19, she spent months pushing for answers while experiencing acne, weight gain, excessive hair growth and irregular periods.
“Being the youngest of four sisters, I knew something was wrong because my experience was totally different to theirs,” she says.
At the time, information about PCOS was limited.
“I was essentially prescribed the pill and abruptly told, ‘You’ll need IVF to fall pregnant one day’, and that was that.”
What followed were years of research, experimentation and frustration as she searched for ways to manage her symptoms. Eventually, a severe health crisis and chronic fatigue led her to acupuncture, an experience that changed the course of her life and inspired her career in Chinese medicine.
Today, Dr Smith works with women experiencing many of the same challenges she once faced.
Among the most common symptoms she sees are irregular or absent ovulation, fatigue, acne and pelvic pain.
“Fatigue is probably the less spoken-about symptom of PMOS,” she says.
“When your body is experiencing metabolic dysfunction and insulin resistance, it is prone to energy crashes and feelings of sluggishness. It doesn’t mean you’re lazy.”
The name change is particularly significant because many women mistakenly believe they have ovarian cysts.
“The biggest thing is for patients to know that they do not have ovarian cysts, despite the appearance of polycystic ovaries on ultrasound,” Dr Smith explains.
“The idea of an ovarian cyst is scary, and people will often imagine cysts that burst and cause a lot of pain. For many people with polycystic ovaries, that won’t be the case.”
Beyond the physical symptoms, experts say the emotional toll of PMOS is often underestimated.
Dickinson says the condition can influence how women see themselves, their bodies and their futures.
“This condition can influence how some women see themselves as people, partners or future parents,” she says.
“I see the emotional impact of PMOS in concerns about fertility, uncertainty and pressure about future family-building, and grief when women’s bodies don’t behave in the way they expect or hoped.”
Given the increased rates of anxiety, depression, body image concerns and emotional distress associated with the condition, Dickinson believes the broader PMOS terminology better reflects its impact on wellbeing and quality of life.
For Dr Smith, the hope is that the name change sparks a bigger conversation.
“I hope the discussion doesn’t end there,” she says.
“I hope the new name removes a lot of the confusion for patients and encourages clinicians to consider the whole story when it comes to PMOS, particularly the metabolic influence of the syndrome.”
Ultimately, both experts agree that while the name may be changing, the most important outcome is greater understanding.
For the millions of women worldwide living with the condition, PMOS may finally provide language that reflects what many have known all along: this is about far more than ovaries alone.